Mall Cares SMAsh It
12th Feb - 30th May
This year we are proud to support SMAsh campaign that’s being run by Mandy one of our security guards and her brother. Over the next 11 months, they will be completing challenges to help fund their trip to trekking across Nepal in November. All the money raised will go to the SMA trust to help continue the important work and research.
What is SMA?
SMA is a genetic neuromuscular disease, which means it is inherited and affects nerves responsible for muscle function. Although classified as rare, SMA is the leading genetic killer of infants and toddlers, with approximately 95% of the most severely diagnosed cases resulting in death by the age of 18 months. Children with a less severe form of SMA face the prospect of progressive muscle wasting, loss of mobility and motor function.
1 in 40 people is an SMA carrier, ie approximately 1.5 million people in the UK
1 in every 6,000 births is affected by SMA.
Progressive wasting (atrophy) of muscles can lead to the following:
- Atrophy in trunk muscles can lead to skeletal deformities (e.g. scoliosis)
- Atrophy in breathing muscles can lead to potentially fatal respiratory problems
- Atrophy in swallowing muscles can lead to difficulties in eating and drinking
The SMA Trust Charity Registration No. 1097765 - SMA (Spinal Muscular Atrophy) is a devastating disease. It is the leading genetic killer of infants and toddlers. The SMA Trust is the only UK charity solely dedicated to funding research into SMA. Our objective is to be active and progressive in the search for a cure, for which we need your help.